Tuesday, January 15, 2008

Spaghetti Anyone?

I'm posting some pictures today of Jake's adventures at home. We have fallen into a great routine of eating, napping, playing (which consists of Jake crawling/trying to walk around the downstairs while destroying the house!), going for walks, and eating much more...Jake is napping now which is why I can take a few minutes to blog. He is my constant joy! In the first picture you can see him in his crib...I love this new expression of his. He will crinkle up his nose and squint his eyes when he's laughing...its priceless!


Here he is "helping" Ty install the baby gate at the top of the stairs. We had trouble finding one to fit our banister, but Ty bought one at Babies R Us this weekend that worked. Its wonderful to have so I don't have to worry about Jake upstairs as much anymore.




I forgot to add in last week's entry that Jake had gained two pounds since his surgery. He weighed in at 19 lbs. at Dr. Grenier's office last Tuesday. He had dropped down to 17 lbs. after surgery but is gaining quickly. He really loves to eat and even cries if you don't give it to him fast enough. I keep telling him patience is a virtue but that doesn't seem to help :) Last night we let him feed himself spaghetti for the first time. Ty and I laughed until we were crying watching him attempt to slurp the noodles down. He had a wonderful time and loved the pasta (even if it was whole wheat). You would think he was part Italian as much as he loves lasagna, macaroni, and now spaghetti.

Wednesday, January 09, 2008

New Year's Cookies


Monday two of my former students from Northland came over to make "New Year's" cookies with Jake and me. Molly is a freshman at UT and Chelsea is a freshman at Case Western in Ohio and they were still in town for Christmas break. Originally they were going to come over to make Christmas cookies, but we got postponed due to the surgery. The beauty of New Year's cookies is they can be whatever you want them to be! I have a plethora of cookie cutters so we made a wide assortment and had a great day catching up. Jake ate his first sugar cookie ever and he was definitely a fan as you can tell from his picture. We even made Gilbert a cookie or two so he was pretty excited as well.


Jake update: Jake had an appointment with Dr. Grenier yesterday and he came home with a great report. He held amazingly still for both his EKG and Echo and smiled at the doctor and all of the nurses. The really great news is there is absolutely no regurgitation from Jake's mitral valve. After surgery there was still a little more than they would have liked, but Dr. Grenier didn't see any at all yesterday. His right ventricle is also shrinking down to more of a normal size. Because his heart is decreasing in size, Dr. Grenier was actually able to find that Jake has another tiny hole in his heart. She suspected that it was there before surgery which means instead of having a partial AV/Canal defect, Jake has a complete AV/Canal defect. During surgery, Dr. Heinle did not see the hole and did not think it was present. Dr. Grenier says it is so small that it would be almost impossible to detect during surgery since there would have been no blood flowing. She says this is completely harmless for Jake and will NOT require surgery or even medication. It just means he will always have a slight heart murmur. He has been on two heart medications since last May. We will slowly stop one medication over the next two weeks and he will just stay on the other for another few months. We will go back again in one month for one more echo and then Jake will just have to go to the cardiologist once a year for check-ups. At the end of the visit, she told us to take our "normal" kid home. What a wonderful phrase! She said she just wants us to keep him in the house for two more weeks and then we can rejoin the world and Jake can be around others again. In the meantime, thank God for the wonderful weather in Houston. Jake and I took a great walk today and enjoyed the outdoors.